Just Diagnosed?


Things you should know
  • There is no cure for IBS, but it can be managed and lived with.

  • Self management is the key. The Gut Trust provides the only web-delivered self management programme for IBS.

  • It isn't going to kill you, nor will it increase your likelihood of developing cancer or other bowel conditions.

  • IBS is a functional illness. That means there is no organic damage: which means there is no blood, or observable damage to your gut.

  • Treatment for IBS is based on the treatment of symptoms. There is no magic pill that treats all the symptoms at once.

  • Medication is most effective when combined with self help, dietary modification, and lifestyle changes. Alternative therapies such as relaxation and massage therapies can be very useful.

  • There are three different types of IBS based on your toilet habit: IBS-D (diarrhoea predominant); IBS-C (constipation predominant) and IBS-A (alternating between diarrhoea and constipation).

  • If you have a confirmed diagnosis, there is usually no need for further gastroenterological investigations, which can save you a lot of time waiting for tests which will probably not help.

  • People with IBS sometimes get depressed, anxious and angry. If this happens to you, you can let it, but understand that it is the illness making you feel like this and that you do not have to let it do so.

  • Do not be ashamed about discussing your symptoms with your doctor. S/he has heard far worse than anything you can tell them, and the more you tell them the better they will be able to help you.

  • The NICE guidelines are the new "gold standard" as far as the NHS is concerned. If you read these, you'll be better equipped to discuss IBS with your GP.

  • The Gut Trust runs a free helpline staffed by specialist nurses to advise you on your condition.

  • You are not alone. 10% of people have some form of IBS, in varying degrees of severity, at one stage or another. There is no need to feel isolated - the Gut Trust is there to provide support, advice and a community of people who know what you're going through. Other people have lived - and thrived - with the same problems you have. You do not walk this path alone.
Things you should do
  • Get a RADAR key for access to disabled toilets in an emergency.

  • Get a multi-language 'Can't Wait' card, to help you gain access to toilets in an emergency, from our online store.

  • Join the Gut Trust for help and advice and access to our Self Management Programme.